Closing the Gap: Why Patient Engagement Can’t Wait

Key Takeaways

  1. Nearly 50% of patients want more involvement in their healthcare decisions, revealing a clear indicator of the ongoing gap in patient engagement and shared decision-making (personalisedcareinstitute.org.uk).
  2. Engaged patients are more likely to adhere to treatment and have fewer hospital visits (vervecollege.edu).
  3. 89% of hospitals use digital tools for engagement, but only 33% of patients feel well-informed (worldmetrics.org).
  4. 40% of HCPs cite multiple hurdles, including limited resources and regulatory requirements, as challenges to effective engagement (worldmetrics.org).
  5. Strategic, omnichannel approaches—from patient portals to peer mentorship—are proven to boost adherence and satisfaction.

For all the progress in modern healthcare—from electronic records to AI-driven insights—a critical question remains: Why do so many people still feel unheard in their own care? Innovation has transformed how we diagnose, treat, and deliver care, yet meaningful patient engagement has not kept pace

Research across multiple settings shows that when patients can share feedback, access information, and collaborate with care teams, outcomes and satisfaction improve (BMJ Open; SAGE Journals). 

Still, bridging that gap from recognition to reality remains a practical challenge—one that determines not only how patients experience care but how engagement takes shape across the healthcare landscape.

What Is Patient Engagement?

The World Health Organization defines patient engagement as “the process of building the capacity of patients, families, carers, as well as health care providers, to facilitate and support the active involvement of patients in their own care, in order to enhance safety, quality and people-centredness of health care service delivery” (who.int). 

In practice, this means empowering patients, caregivers, and families to ask questions, share feedback, and collaborate on treatment decisions, helping them move from passive recipients to active partners.

Why Patient Engagement Matters Now

Digital transformation continues to reshape how patients and healthcare providers (HCPs) engage: 89% of hospitals now use digital patient engagement tools, and 72% of patients want easy online access to their medical records (worldmetrics.org). Yet only 33% feel well-informed about their condition. 

Technology has transformed how healthcare connects and communicates, yet engagement still depends on aligning information, insight, and experience in ways people can trust.

Barriers That Persist in Patient Engagement

Despite widespread agreement that engagement leads to better outcomes, 40% of HCPs report significant barriers to implementing engagement strategies, from limited resources to regulatory constraints (worldmetrics.org). On the patient side, 44.6% of patients want to feel more involved in decision-making (personalisedcareinstitute.org.uk), showing how information gaps continue to limit shared understanding.

Language differences, health literacy, and unequal access to digital tools further widen the gap, particularly for older adults and underrepresented groups. These challenges show that engagement often breaks down in execution—not in intention—highlighting the ongoing need to make it a consistent practice rather than an aspiration.

Engagement in Practice: Evidence-Based Approaches

  1. Co-Creation and Advocacy
    Engagement begins with collaboration. Co-create programs and resources with, not for, patients, caregivers, and advocates. Their lived experience strengthens this work, from trial materials to education and advisory boards.
  2. Ongoing Connection and Feedback
    Facilitate peer support communities, mentorship programs, and real-time feedback channels to listen, learn, and adapt strategies based on firsthand insight, helping patients, caregivers, and families share their stories and build confidence in care.
  3. Shared Decision-Making
    Incorporate decision aids, visual tools, and structured consultations that invite patients to weigh in on treatment options.
  4. Personalized, Omnichannel Communication
    Use patient portals, SMS reminders, and mobile apps to meet individuals where they are. Research shows digital engagement strategies can boost adherence by 21%  (worldmetrics.org).

How Does Patient Engagement Strengthen Clinical Research?

In healthcare, engaged patients are 2.5 times more likely to report high satisfaction with their care and 25% more likely to adhere to lifestyle changes (worldmetrics.org). These same behaviors—empowerment, partnership, transparency—that improve routine care also shape clinical research. Embedding patient engagement practices into study designs can help strengthen recruitment, retention, and trust among participants, sites, and sponsors.

The Future of Patient Engagement

New forms of engagement are emerging at every stage of care, from AI-assisted interpretation of data to peer networks that connect people with shared experiences. The next horizon is not only access, but adaptability—ensuring that technology and human understanding advance together to meet patients’ diverse needs.

Progress will depend on collaboration that learns continuously, between patients, providers, and the healthcare organizations enabling the next generation of engagement.

The Reverba Global Way: Thought Leadership in Action

At Reverba Global, patient-centric innovation is our guiding principle. We view engagement as a continuous loop between listening and action. Technology supports that loop, but trust, context, and clarity sustain it. From clinical to commercial settings, our work connects patients, HCPs, and partners through programs and data-driven insights that make science clear, human, and actionable.